Thursday, September 6, 2012

Magic Mirror ...

Living with SPTCL can be quite challenging due to the rarity of it. I am now in search of another oncologist who will take me on as their patient. I may have to travel across the state, but, I heard through word of mouth that this particular doctor has experience with T-cell lymphomas and is doing research. I've been through this before, only to be told, "Can I ask why you chose me? I have never treated anyone with this form of Lymphoma!" This, after two prior calls to her office where her office staff assured me she had experience in treating SPTCL. I'm hopeful that this time will be different. Wish I could just peer into a magic mirror first to make sure that this doctor will be the one. It is an emotional roller coaster trying to find someone who is willing to take the risk of treating someone who has a rare cancer. At times I feel like a leper. But, hopefully within the next month, I will have met the doctor who is going to change my life for the better. I am in search of my Prince Charming to whisk me away from SPTCL ...!

2 comments:

  1. Hey Jodi !
    You should ask Judy about the doctor who told her she had a stroke. Judy looked up at the ceiling and felt for her own truth and said "no, that's not it." He was appalled. She stayed in the hospital 3 more days at his request for MRI etc and yet she still sourced her own diagnosis. On the last day he finally agreed with her that it was vertigo.
    My belief is that a good doctor can be excellent at giving assistance and moral support but healing comes from you opening a space and allowing opportunity for that assistance to show up. However I believe in the end You heal you.

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  2. AMEN! I could not agree with you more! Healing must begin from within.

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